Our Missing Peace is a small charity working to support bereaved parents and change attitudes toward discussing child death. 

what is a Vilomah? 

Our missing peace founder -  "wife who loses a husband is called a widow. A husband who loses a wife is called a widower. A child who loses his parents is called an orphan. There is no word for a parent who loses a child.That’s how awful the loss is.– Jay Neugeboren – An Orphan’s Tale – 1976
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This is something I have struggled with ever since we had our first miscarriage.That moment we had our future taken away from us; the future that had our child in it.
Since Ben died this has become even more relevant. When someone asks "How many children do you have" I can now respond, "I am a Vilomah".

Vilomah means "Against the natural order".A 'label', a 'name', for the complete unthinkable." 

This word, this title, this parental identity deserves to be in the Dictionary. 

https://www.ourmissingpeace.org