Stop harming ME/CFS patients - take CBT/GET out of NICE guidelines NOW.
Stop harming ME/CFS patients - take CBT/GET out of NICE guidelines NOW.
Why this petition matters
NICE has promised to review its current guidelines on ME/CFS, which is not scheduled to be completed until October 2020. Meanwhile it has left the current guidelines in place, despite the recommendations for treatments that are known to be harmful.
Stop harming patients. Take CBT/GET out of ME/CFS guidelines now! Continuing to recommend GET in the face of evidence of harm amounts to MEDICAL ABUSE and VIOLATION OF HUMAN RIGHTS.
On the 24th January 2019, a motion was passed in the British Parliament which calls for (among other things) Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) to be suspended as treatments for ME.
See the GET and CBT that is currently used as treatment for ME/CFS here:
https://me-pedia.org/images/8/89/PACE-get-therapist-manual.pdf
http://me-pedia.org/images/b/b4/PACE-cbt-therapist-manual.pdf
See the evidence for harm here:
http://journals.sagepub.com/eprint/hWSxVIBTzDtqisvafkhE/full
https://emerge.org.au/diagnosis/managing-symptoms-daily-basis/exercise-mecfs/#.WrttC4jwaUk
http://bit.ly/EmergeAusPEMandGET
http://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx
http://bit.ly/ChldnWmecfsVidMay2018
See the Parliamentary debate in February 2018 on the PACE trial and the harms of GET here:
See the further Parliamentary debate in June 2018 on Treatment and Research for ME here:
https://www.parliamentlive.tv/Event/Index/3d63c39d-18f3-4cd7-8509-c91785dced98
Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) must stop now. Enough ME/CFS patients worldwide have been harmed by these treatments.
Decision-Makers
- Dr. Peter BarryChair, ME/CFS guideline committee, NICE.
- Baroness Finlay of LlandaffVice Chair, ME/CFS guideline committee, NICE.
- Dr. William WeirME/CFS guideline committee member, NICE.
- Tony CrouchME/CFS guideline committee member, NICE.
- Sir Andrew DillonChief Executive, NICE.