GOT CHIARI ? WE NEED TO BE HEARD!!! we need our own DAY in SEPTEMBER ...

GOT CHIARI ? WE NEED TO BE HEARD!!! we need our own DAY in SEPTEMBER ...

Started
29 December 2017
Petition to
Signatures: 120Next goal: 200
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Why this petition matters

Started by Purple Hair Day 4 Chiari

Purple Hair Day 4 Chiari Global is a fun, non-profit charity raising awareness, support and funds for Professor Marcus Stoodley of Macquarie University, Sydney, who is doing vital research here in Australia on CHIARI MALFORMATION.

Our Founder Melissa Hoffman started PHD4CG in 2015 , with the vision to help others with Chiari Malformation, like herself and children, to get proper care, medical treatment and awareness to lessen the pain and burdens that come with having a chronic illness such as this.

A word from Mel -
"Melissa Hoffman here �
I hope you all are traveling ok �
PHD4CG began in South Australia after I was diagnosed with Chiari by accident a few years ago.
Then knowing what I was looking for,
2 of my 4 kids also were recently diagonsed with CM1 so far.
We all suffer quite different symptoms, and it's progressing in all of us more & more. Trying to get updated information to any of the stubborn and uninformed Drs here, is proving quite impossible also.
I've been trying to get answers for some 40 odd years with endless failed treatments & operations , travelling to see various health professionals across the Australia ��..
So I started an awareness drive & now I'm Founder/Director-volunteer @ Purple Hair Day 4 Chiari Global ��
A public Chiari awareness Co , #PURPLEHAIRPLEASECARE.
Fully registered & approved nationwide, not for profit foundation & pages to raise public awareness & funds GLOBALLY. Much needed research has just started in Sydney with Prof M.Stoodley. Also we will also strive to get better treatments of patients, families and their supports.
Events and more awareness , humorous memes to be expected in 2020 with a fresh start, bigger and better things are to be expected :)

This wouldn't be possible without our partnership with:
Leonie Clarke - from Chiari WA & Gran in a Van comedy act. Which spreads awareness for Chiari through laughter.
Morgan Kennedy from Chiari Malformation Type 1 Australia.
Our sponser:
Taylor's Accounting SA.
And other helpful members and contributors:
Leonie Clarke - Director- Volunteer
Laura Kirby - Director-Volunteer
Fuure - Logo Design (reimagined from my original drawing �)
Tony Smith - Video awareness
Mark Taylor - Director-Volunteer

Thank you all xx
Cheers Mel & kids
#PHD4CG #purplehairbeaware
@leonieclarke #CHIARIWA #fuure #laurabenjamin @morgankennedy #CHIARIMALFORMATIONTYPE1AUSTRALIA #missbrain #bobbert

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Signatures: 120Next goal: 200
Support now
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